Trial mobile version Guidances- combined files 6_27_14 - page 5

3
GENETICS AND GENOMICS RESEARCH
 Centers for Disease Control (CDC) Office of Public Health Genomics (OPHG)
This is a resource that provides information on how genomics research translates into population
health benefits. Topics covered include:
 Updates on the health impact of genomics
 The relationship between genes, environment, and health
 Family health history and disease
 Genomic tests
 Searchable knowledgebase of genetic associations (HuGE Navigator)
 Network for the translation of genetic research into preventive medicine and public
health (HuGENet)
 Genome.gov: Talking Glossary of Genetic Terms
This is a glossary of genetic terms provided by the NIH National Human Genome Research
Institute. It contains written definitions of genetics terms as well as audio recordings of NIH
scientists explaining genetic terms for the lay person, or non-scientist. It also provides term
pronunciations, illustrations, and 3-D animations.
 National Human Genome Research Institute Overview of Federal Regulation of Genetic
Tests
This resource describes what a genetic test is, provides a chart of the key organizations involved
in the federal oversight for genetic testing, and related resources. This is a helpful resource for
investigators and institutional review boards involved in research that includes genetic testing.