Government and Organizations

Agency for Healthcare Research and Quality 
     AHRQ research and activities related to AIAN populations

American Indian Cancer Foundation 

American Indian Institute the University of Oklahoma

First Nations Development Institute

Great Plains Tribal Chairmen's Health Board

Indian Health Service

Missouri Breaks Industries Research, Inc 

National Congress of American Indians and NCAI Policy Research Center

National Indian Health Board

National Institutes of Health NIH is made up of 27 Institutes and Centers

National Institute on Minority Health and Health Disparities

Office of Minority Health
     National Partnership for Action to End Health Disparities
     Profile page for American Indian/Alaska Native

Office for Human Research Protections

Substance Abuse and Mental Health Services Adminstration

University of New Mexico Center for Native American Health

University of Washington Indigenous Wellness Research Institute

Urban Indian Health Institute

Reports

Data on Health and Well-being of American Indians, Alaska Natives, and other Native Americans
HHS Office of the Assistant Secretary for Planing and Evaluation

Multiple reports on Strengthening Tribal and & Community Institutions 
First Nations Development Institute

Ethical Standards for Research

Belmont Report

This report, originally named "Ethical Principles and Guidelines for the Protection of Human Subjects of Research", was published in 1979 and is used in most national and many international regulations for the protection of the rights and welfare of human subjects in research. It was adopted by the U.S. Department of Health and Human Services (HHS) and incorporated into 45 CFR 46, the code of U.S. Federal Regulations for the protection of human subjects in research.

Declaration of Helsinki

This is the newly released 2013 revision of "World Medical Association Declaration of the Helsinki Ethical Principles for Medical Research Involving Human Subjects". The ΓÇÿDeclaration of Helsinki' is a code of ethics for clinical research that was first published in 1964 and is used in most national and international regulations for the protections of the rights and welfare of human subjects.

International Ethical Guidelines for Biomedical Research Involving Human Subjects

This is a document created by the Council for International Organizations of Medical Sciences (CIOMS) in collaboration with the World Health Organization (WHO). It was created to serve as a guide, particularly for low-resource or developing countries to use in defining policies on the ethics of biomedical research, and for establishing mechanisms for review of research involving human subjects. The latest version was published in 2002.

Standards and Operational Guidance for Ethics Review of Health-Related Research with Human Participants

Created by the World Health Organization, this contains standards for research ethics review and research ethics review committees. It also details researcher responsibilities.

The Universal Declaration on Bioethics and Human Rights

This is a document adopted in the 2005 General Conference of the United Nations Educational, Scientific, and Cultural Organization (UNESCO) by United Nations member states. It details principles and rules for ensuring the benefits of medicine, science and technology within the framework of respect for human rights.

NIMHD Transdisciplinary Collaborative Center Programs

Other Transdisciplinary Collaborative Centers working with NIMHD.

ALABAMA

Mid-South Trandisciplinary Collaborative Center for Health Disparities Research
University of Alabama at Birmingham 
Birmingham, AL
Principal Investigator: Mona Fouad, MD, MPH

GEORGIA

TCC for Health Disparties: Informing & Influencing Health Policy and Practice
Morehouse College
Atlanta, Georgia
Principal Investigator: David Satcher, MD

MARYLAND

The Health Policy Research Consortium (HPRC) Program
CTIS
Rockville, MD
Principal Investigator: Kweisi Mfume

MINNESOTA

National Transdisciplinary Collaborative Center for African American Men's Health
University of Minnesota
Minneapolis, MN 
Principal Investigator: Selwyn M. Vickers, MD

MISSISSIPPI

Gulf States Collaborative Center for Health Policy Research (Gulf States CC)
Coastal Health Center 
Hattiesburg, MS
Principal Investigator: Sandral Hullet, MD

SOUTH DAKOTA

Collaborative Research Center for American Indian Health
Sanford Research/USD
Sioux Falls, SD
Principal Investigator: Amy Elliott, PhD

VIRGINIA

The Hampton University Regional Transdisciplinary Collaborative Center
Hampton University
Hampton, VA 
Principal Investigator: Raymond E. Samuel, MD, PhD

Miscellaneous

Indigenous Governance Database

The Indigenous Governance Database is an online resource center for Native nation leaders, key decision-makers, employees, citizens, and researchers in search of educational and informational resources about nation building, sovereignty, governance, leadership, and sustainable economic and community development in Indigenous country.  Developed by the Native Nations Institute for Leadership, Management, and Policy at The University of Arizona (with support from the Bush Foundation and the Morris K. Udall and Stewart L. Udall Foundation), the Database features a comprehensive catalogue of text, video and audio resources.

FAQ PDF: Questions and answers providing basic information on American Indian populations.

Lakota Dictionary
Research Terminology translated to Lakota by Gene D. Thin Elk, Sichangu Lakota, Towela Clan, Director - CRCAIH Culture, Bioethics, & Science Core - Lakota Dictionary

'Research Toolkit': For Health Research (from Design to Dissemination)
Research Toolkit

Fast Facts about Responsible Research Partnerships with Indigenous Communities
Fast Facts PDF